www.anencephalie-info.org

Updates:

 

23.09.07 La historia de Sandra New story in Spanish
23.09.07 Links about anencephaly New link to a video of a baby with anencephaly
29.08.07 Sinead, my son had a baby with anencephaly New page in English
22.08.07 Books for grieving parents New book recommandations
22.08.07 Robert William New story in English
14.07.07 pictures of babies with anencephaly New pictures of Gabriel John
14.07.07 Gabriel John New story in English
27.07.07 pictures of babies with anencephaly New picture of Gracie Lynn
27.07.07 Gracie Lynn New story in English
26.07.07 Myriam Nouvelle histoire en français
26.07.07 Gracie Lynn's birth plan New page in English
26.07.07 pictures of babies with anencephaly New pictures of Sarah
26.07.07 Sarah New story in English
22.06.07 Don't waste Chase's life New article in English
21.06.07 Fotos de bebés anencefálicos New picture of Fabian Alejandro
18.06.07 La historia de Fabian Alejandro New story in Spanish
12.06.07 pictures of babies with anencephaly New picture of Jaden
12.06.07 Jaden Thien New story in English
07.06.07 pictures of babies with anencephaly New pictures of McCoy
07.06.07 McCoy New story in English
02.06.07 What is a neural tube defect? Link to a cool animation about the closure of the neural tube defect
25.05.06 pictures of babies with anencephaly New pictures of Julie
14.05.07 Literaturtipps Neues Buch
14.05.07 Books for grieving parents New book
14.05.07 A story of love New story in English
11.05.07 ...and God will make him a cake New story in English, "My daughter had a baby with anencephaly"
04.04.07 Ron Levi Neuer Erfahrungsbericht auf Deutsch
30.03.07 Jonathan New story in English
22.03.07 Links about anencephaly New link to the PONTI Study  www.pontistudy.ich.ucl.ac.uk
15.03.07 Isabel Eve New story in English
12.03.07 Preparation of the birth of a baby with anencephaly New text on that page
12.03.07 How I dealt with family and friends New page in English
12.03.07 What you can do for yourself New page in English
12.03.07 what family and friends can do for parents of a baby with anencephaly New page in English
12.03.07 Resources for grandparents, family and friends affected by anencephaly New page in English
16.02.07 David and Jonathan New story in English
13.02.07 My daughter had a baby with anencephaly New page in English
13.02.07 Anencephaly thoughts from a ‘sideways stakeholder’ New page, my brother had a baby with anencephaly
12.02.07 Fotos von Babies mit Anencephalie Neues Fotos von Gabriel
12.02.07 Gabriel Graser Neuer Bericht auf Deutsch
07.02.07 About us Who we are and what we want
07.02.07 Anencephaly Information New look and organisation of the English pages
27.11.06 Ava Grace New story in English
14.11.06 pictures of babies with anencephaly New pictures
14.11.06 Michael David New story in English
27.10.06 feuille d'information sur l'anencéphalie Nouvelle page en français, papillon à télécharger et distribuer
27.10.06 Infoblatt Anencephalie Neue Seite auf Deutsch, Infoblatt zum Runterladen
24.10.06 pictures of babies with anencephaly New pictures
24.10.06 Kyle Benjamin New story in English
28.08.06 Joseph Jerome New story in English
27.08.06 Zakary Evan New story in English
31.07.06 Timothy Paul New story in English
30.07.06 Anna and Logan New story in English
18.07.06 new article about anencephaly published

Jaquier M, Klein A, Boltshauser E., 

Spontaneous pregnancy outcome after prenatal diagnosis of anencephaly,

BJOG 2006; 113:951-953

12.07.06 Informatieblad over anencefalie New page in Dutch
08.06.06 Karen's girl New story in English
08.06.06 La historia de Sebastian, bebé con ancrania New story in Spanish
27.05.06 Pamphlet about anencephaly Download this pamphlet to help other affected families!
15.03.06 My friend had a baby with anencephaly New page in English
15.03.06 Camdyn New story in English
14.03.06 Links about anencephaly New Link to the story of Gabriel Aaron
08.03.06 Pictures New pictures of Malachi Samuel
08.03.06 Malachi Samuel New story in English
07.03.06 Report about the birth and life of babies with anencephaly Important information about anencephaly
17.02.06 Links about anencephaly New link to the story of Kendall
17.02.06 Maria de los angeles New story in Spanish
02.02.06 Fotos Neue Fotos von Jenna Grace
02.02.06 Jenna Grace Neue Geschichte auf Deutsch
26.01.06 Información de Anencefalia New link to a Spanish support group
26.01.06 La historia de Angel New story in Spanish
24.01.06 Birthplan for Jenna Grace New page in English
24.01.06 Pictures New pictures of Jenna Grace
24.01.06 Jenna Grace New story in English
13.01.06 Rose Dale New story in English
11.01.06 Links about anencephaly New link to Grace York's story
11.01.06 Pictures New pictures of Hope Marie
11.01.06 Hope Marie New Story in English
9.01.06 Pictures New picture of Maryann
9.01.06 Maryann New story in English
2.12.05 Books for grieving parents New page with helpful books
1.12.05 Literaturtipps für Eltern Neue Buchrezension
24.10.05 Literaturtipps für Eltern Neue Buchrezension
11.10.05 One Midwife's Story New page in English
24.09.05 Poema - um elefante no nosso espaço New page in Portuguese
24.09.05 Conselhos para amigos e familiares de pais de um bebê anencéfalo New page in Portuguese
24.09.05 acompanham um casal durante a gravidez de um bebê com anencefalia New page in Portuguese
23.09.05 Dicas para fotografar bebês anencéfalos New page in Portuguese
23.09.05 Criar Recordações de Bebês anencéfalos New page in Portuguese
23.09.05 Conselhos para a preparação do nascimento New page in Portuguese
22.09.05 A história de Annalise New story in Portuguese
19.09.05 informação sobre anencefalia New text on the Portuguese page
10.09.05 Fotos de bebés anencefálicos New picture on the Spanish picture page
10.09.05 La historia de Mary Elizabeth New story in Spanish
07.09.05 La historia de Lucila Maribel New story in Spanish
06.09.05 pictures New pictures of Faith and Sarah
06.09.05 The story of Faith and Sarah New story in English
07.07.05 Private pictures new pictures added
30.06.05 Stories The stories now have their own page
23.06.05 Fotos Neues Foto
23.06.05 Charlotte Neuer Erfahrungsbericht
10.06.05 Photos Nouvelle photo de Charlotte Mary
10.06.05 Charlotte Mary Nouveau témoignage en français>
10.06.05 Fotografie di bebè anencefali New page in Italian
10.06.05 La storia d'Anouk New story in Italian
27.04.05 The story of James New story in English
21.04.05 Anencephaly Network Would you like more exchange than the reading of personal stories? Join the Anencephaly Network
18.04.05 creating memories New link to www.quietrefuge.com
04.04.05 la storia d'Anna New page in Italian
01.02.05 Preparation of the birth New page in English
01.02.05 Samuel und Jonathan Nachtrag zu Samuel's Geschichte
31.01.05 La historia de Anouk New page in Spanish
12.01.05 private page New pictures on the private picture page
10.01.05 anencefalia info New website in Italian
05.01.05 Perguntas mais frequentes sobre anencefalia New page in Portuguese
16.12.04 Pictures New pictures of Luke Daniel
16.12.04 The story of Luke Daniel New story in English
10.12.04 Pictures New picture of Joyann
10.12.04 The story of Joyann New story in English
3.12.04 The story of Jesse Alexander New story in English
21.11.04 Consejos par la preparacion al nacimiento de su bebe anencefalo New page in Spanish
17.11.04 Generando Recuerdos de su precioso bebe New page in Spanish
31.10.04 Links about anencephaly new link to the claymation  "The Life of River Creedance"
15.9.04 Como prevenir la anencefalia new page in Spanish
14.9.04 Fotos de bebés anencefálicos new picture on the Spanish page
14.9.04 La historia de Ayleen Camila new page in Spanish
9.9.04 Creating memories of your dying baby After the baby's birth: new memory idea
9.9.04 Links about anencephaly stories about other babies:
link to Charlotte Mary's story
link to Jessica Jade's story
2.9.04 Preguntas mas frecuentes acerca Anencefalia new page in Spanish
30.7.04 Links about anencephaly stories about other babies: link to Jayden's story
18.7.04 Links about anencephaly stories about other babies:
link to Talitha Hope's story
link to Colby's story
13.7.04 Sina und Max Bericht aus der Sicht der besten Freundin
7.7.04 Pictures new pictures of Amanda and Pedro
7.7.04 Pedro José new story in English
7.7.04 Amanda Marie new story in English
23.6.04 Sina und Max neuer Bericht
23.06.04 Liens réorganisé la page des liens,
ajout de nouveaux liens
23.06.04 Links about anencephaly stories about other babies: link to Stephen's story
cephalic disorders: link to Donna Joy's story
17.06.04 Fotos anencephaler Babies neues Foto
17.06.04 Emil neuer Bericht
07.06.04 Información de Anencefalia Información de Anencefalia en Español


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