Resources for parents who carry their baby to term despite a poor prenatal diagnosis
- Stories
- Films and Slideshows
- Songs
- Interviews / Shows
Stories
Amniotic band syndrome
Cephalic Disorders
Anencephaly
* many stories on the anencephaly information site
* Alexa
* Anastasia
* Annalise
* Ariel Elisabeth
* Austin
* Ava Grace
* Benedict Oliver
* Boston Michael
* Brandon Bobola
* Caleb
* Charlotte Mary
* Colby
* Cyril
* Daniel Ray
* Eden Rebekah
* Emily Rose
* Faith Lynn
* Gabriel
* Gabriel Aaron
* Gabriel James
* Gracie Jo
* Jasmine Faith
* Jenna
* Jessica Marie
* Jessica Jade
* John Raphael
* Logan Quinn
* Malachi Samuel
* Mary Elisabeth
* Mary Magdalene
* Matthew
* Michaela Hope
* Nathan
* Rosie
* Tabitha
* Talitha Hope
* Timothy Paul
* Weston
* William Jasper
Twins:
* Lee and Leah
* Sunshine and Katelyn
Encephalocele
* Haley Faith
* Faith Aminah
* Joshua blog about his story
* Sami
Holoprosencephaly (HPE)
* Larson
* Pearl
Hydranencephaly
* Rays of Sunshine, Hydranencephaly Information
Microcephaly
* Benjamin's story
Chromosome Disorders
Trisomy 5p
* Elisabeth et Mary Ann
Chromosome 12q deletion (q15q21.2)
* Noah
Trisomy 13 / Patau's Syndrome
* Gemma
* Natalia
* Noah Alexander
* Olivia Hope
Trisomie 18 / Edward's Syndrome
* Aaron Jae
* Abigail Renee
* Abigail Wilsford
* Aliva
* Annabel Grace an amazing 3 year old girl
* Colm
* Daniel
* Eli Bradley
* Elizabeth
* Gavin Cade McMath
* Gareth
* Gerard
* Hope Elizabeth
* Jacob Ryan
* Jeanette Isabella
* Johnny
* Jordan William
* Kayden
* Kammie
* Maddox
* Marie
* Micah
* Naveah Faith
* Peter
* Rachel and Regan
* Simon Andrew King
* Sophia
Congenital Diaphragmatic Hernia (CDH)
* Allison
* Avery
* Brandon
* Cayden Eugene
* Cecilia
* Claire
* Connor
* Dakota Mae
* David
* Graham
* Jackson
* Joel
* Judah
* Leah Claire
* Madison
* Mert
* Nanette Jo
* Patrick
* Raymond Drew
* Robert Joseph Bryce
* Sarah Christina
* Silas Charles
* Sofia
Disorders of the cardiovascular system
Ebstein's Anomaly
* Jacob
Hypoplastic Left Heart Syndrom (HLHS)
* Austin
* Braedon
* Seamus
Hydrops foetalis
* Georgia
Kidney and urinary tract disorders
Autosomal Recessive Polycystic Kidney Disease (ARPKD)
* Bennett
* Remi Elaine
Bilateral Renal Agenesis / Potter Syndrom
* Belecia
* Caitlyn
* Gabriela Lael
* Hunter
* Jonathan
* Joshua
* Michael
* Miriam
* Talina
* Tommy
Polycystic Kidneys
* Audrey Caroline
* Eli
Posterior urethral valves (PUV)
* Samuel
Lower urinary tract obstruction (LUTO)
* Vayden James
Skeletal disorders
Achondroplasia
* Owen
Thanataphoric Skeletal Dysplasia
* Gabriel Jonathan
* Jamie Lynn
* Leah
Spina bifida
* Andrew
* Isaac Russel
Twin to twin transfusion syndrome (TTTS)
* Lucas and Matthew
* Emma and Macey
VACTERL / VATER Association
* Jenna
Films and slideshows
* "99 Balloons" Trisomy 18
* Audrey Caroline Polycystic Kidneys
* The Life of River Creedance, a claymation / movie anencephaly
* Joshua encephalocele
* Austin John anencephaly
* Chase anencephaly
* Dharma Lucille anencephaly
* Gabriel James anencephaly
* Isabel Eve anencephaly
* Olivia Faith anencephaly
* Zion-Grace Elizabeth anencephaly
* Benjamin Elijah Andrew trisomy 18
* Copeland Farley trisomy 18
* Jacob Ryan trisomy 18
* Lilly trisomy 18
* Maddox Donald trisomy 18
* Sully trisomy 18
Songs
* I will carry you by Selah
* Down The Road Of Bittersweet by Karl Kohlhase
Interviews / Shows
* The Smith Family Story
* Eight Days the story of Copeland, who had trisomy 18
* Radio interview of Austin's parents (anencephaly). The interview actually
starts about 11 minutes into the recording.
Submit a link.
Last update April 2, 2019
