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Anencephaly pamphlet

For newly diagnosed parents, nothing is as important as getting correct information about their baby's condition as soon as possible. This is why we made a pamphlet with the most important facts about anencephaly along with some links to helpful places. We believe that information doesn't lessen the pain, but it helps to take the right decisions and to feel less lost.

Our goal is that when parents get the diagnosis of anencephaly, their doctor can immediately give them the pamphlet. But how to get the word out to the doctors? Nothing easier than that:

Download the anencephaly pamphlet here and print some of them out. Then bring them to your doctor at your next appointment or send them along with a letter.

We all were grateful for any help or information we got in our time of needs, so here YOU can make a difference in another family's life.

Thank you very much for your help!

pamphlet in English
pamphlet in Spanish
pamphlet in German
pamphlet in French
pamphlet in Italian
pamphlet in Dutch
pamphlet in Danish
pamphlet in Portuguese
pamphlet in Russian / Информация об анэнцефалии
pamphlet in Indonesian
pamphlet in Slovenian
pamphlet in Korean / 알림지
pamphlet in Arabic / عربي



Sample Advance Directive Birth Plan



Report about the birth and life of babies with anencephaly

Spontaneous pregnancy outcome after prenatal diagnosis of anencephaly,




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Last updated May 10, 2022