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Resources to prepare the baby's birth


"You matter to the last moment of your life,
and we will do all we can not only to help you die peacefully,
but also to live until you die."

Dame Cicely Saunders, founder of the modern hospice movement



A few articles that will guide you through the following weeks and help you make this time as meaningful and memorable as possible:



Preparation of the birth of a baby with anencephaly

About the importance of bonding with a baby with anencephaly

Siblings, or how to help your other children coping

Birth or Parenting Plans

   Sample Advance Directive Birth Plan

   Gracie Lynn's parenting plan

   Jenna Grace's parenting plan

   Charlotte's parenting plan Charlotte's parents had already lost another baby to anencephaly before.

Outfits for your baby

   Knitting Pattern for a hat that fits for babies with anencephaly

   Crochet Pattern for hats that fit for babies with anencephaly

Memories and keepsakes

   Advice for taking pictures of deceased or dying babies

   Creating memories and keepsakes of your precious baby

   How to make a beautiful wall decoration with your baby's footprints

   How to make a notebook with your baby's footprints

   Ways to remember your baby after the death


Report about the birth and life of babies with anencephaly


Don't waste your baby's life


Carrying to term stories



"The story of life is quicker than the wink of an eye,
the story of love is hello and goodbye,
until we meet again."

Jimi Hendrix



Last updated April 10, 2023