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Gilda Joann

 

Gilda, baby with anencephaly

My husband, Jon, and I found out during our first trimester ultrasound/screening that our sweet daughter had Anencephaly.

We decided to let God take the wheel, and I was able to carry her for 41 weeks and 4 days. Every kick brought a smile and tear.

We had the privilege of working with a pediatric palliative care team (IMPACT) over the course of the next 6 months, and they were truly instrumental in the planning and healing processes.

Gilda Joann was born at 5:02am on 09/29/16. She weighed in at 6 ½ pounds, and was 19 ½ inches long. She was our perfect Gilda girl!

We had 8 glorious hours with her, and we were able to give her a bath, dress her, snuggle her, get her handprints and footprints, read to her, sing to her... the list goes on. She was surrounded by a roomful of people who loved her unconditionally, her grandparents, aunts, uncles, nephew, and family friends.

She went to be with Jesus shortly after 1:00pm, and we are so grateful and blessed for the opportunity to encircle her in love during her short, but impactful life.

She was able to donate her heart valves to another person, and we are truly proud of our sweet girl.

Proud Parents,

 

 

Last updated April 4, 2019