Newsletter

Dear parents and families,

The experiences you shared with your baby are unique and incredibly valuable. Your insights can offer comfort, guidance, and hope to other families who find themselves walking this difficult path.

Through my newsletter, which I publish just 2 to 4 times a year, I would love to keep you updated on the work of anencephaly.info. I will share new content from the website and give you updates on my latest projects.

Your voice and your experience matter

For many of my projects, I rely heavily on the input and perspectives of families who have experienced anencephaly firsthand. If you are willing to share your point of view and your story, you will help me tailor my resources to better support future parents.

Supporting vital research

From time to time, I also forward calls for studies from healthcare professionals. These studies focus on topics related to carrying a baby to term when a short life after birth is expected. By participating, you can help improve medical and psychosocial care for families in the future.

I purposely keep this newsletter infrequent to respect your time and inbox, and you can unsubscribe at any time.

Thank you from the bottom of my heart for your trust and your invaluable support.

Warmly,

Monika

Last updated Mayy 16, 2026